tag:blogger.com,1999:blog-3490211966730375631.post6393735231935716797..comments2024-03-22T04:19:23.874-05:00Comments on The Bunny Bungalow: The Confluence of Event and Time or How Isabel Allende Saved My LifeAnniehttp://www.blogger.com/profile/10420304054870082302noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-3490211966730375631.post-56845695812610369012011-12-30T17:25:06.594-06:002011-12-30T17:25:06.594-06:00I came upon your blog post when I googled the word...I came upon your blog post when I googled the words confluence and serendipity in reference to a post I was writing on my facebook page about Harry Morgan, the actor who recently died. I became interested in reading your post because of how you defined serendipity; I cut and pasted it into my post. I was also interested because I read Isabelle Allende's book about her daughter, "Paula" and thus learned about this disease, porphyria. Furthermore, I was drawn to your blog post because of its name, THE BUNNY BUNGALOW<br />A LIFE LESS ORDINARY IN A TINY TEXAS BUNGALOW. Lastly, the photo you have, I am thinking it is your dwelling, is exactly the one I wish I would find one day to live out my life. So, all in all, I suppose it was serendipity and a confluence of events that brought me to you. I have enjoyed the visit. ....Sherril from New JerseySherrilhttps://www.blogger.com/profile/17043182622334797614noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-86358755645900501302011-12-30T17:21:47.532-06:002011-12-30T17:21:47.532-06:00I came upon your blog post when I googled the word...I came upon your blog post when I googled the words confluence and serendipity in reference to a post I was writing on my facebook page about Harry Morgan, the actor who recently died. I became interested in reading your post because of how you defined serendipity; I cut and pasted it into my post. I was also interested because I read Isabelle Allende's book about her daughter, "Paula" and thus learned about this disease, porphyria. Furthermore, I was drawn to your blog post because of its name, THE BUNNY BUNGALOW<br />A LIFE LESS ORDINARY IN A TINY TEXAS BUNGALOW. Lastly, the photo you have, I am thinking it is your dwelling, is exactly the one I wish I would find one day to live out my life. So, all in all, I suppose it was serendipity and a confluence of events that brought me to you. I have enjoyed the visit. ....Sherril from New JerseySherrilhttps://www.blogger.com/profile/17043182622334797614noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-22158248952396775692011-09-10T22:20:24.170-05:002011-09-10T22:20:24.170-05:00Dear Anonymous,
Carpeting may have padding made o...Dear Anonymous,<br /><br />Carpeting may have padding made of urethane which may contain solvents like formaldehyde, which can cause fumes which might be a trigger for some persons with porphyria. The fumes from aging latex gave me a headache, as did the fumes from the oil-based paint, then an attack to fight. The emotional and physical stress of moving was also a trigger for me.<br /><br />Best wishes for you and your son,<br />Annie<br /><br /><br />P.S. Please read the side effects of cimetidine for males. Before deciding.Anniehttps://www.blogger.com/profile/10420304054870082302noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-48910654762227658422011-09-10T10:17:07.772-05:002011-09-10T10:17:07.772-05:00Thanks for your response. We will try the cimetidi...Thanks for your response. We will try the cimetidine. Your comment about the fumes from carpeting interests me--my son's episodes increased in frequency and severity after he moved into an apartment with new carpeting. How did you discover this connection? Is latex the trigger?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-12010593351015354112011-09-09T17:59:43.342-05:002011-09-09T17:59:43.342-05:00Dear Anonymous,
I have not had a major attack sinc...Dear Anonymous,<br />I have not had a major attack since I started taking Tagamet (cimetidine) but after moving into our remodeled Bungalow and being exposed to all the fumes of remodeling and fumes of off-gassing rugs with latex (which we didn't know was hidden between the rug and its backing), I've had to take codeine and glucose tabs to head off attacks, plus get rid of the rugs. It appears that even with cimetidine, too many triggers at once are still overwhelming to the system. Good luck to you and your son.Anniehttps://www.blogger.com/profile/10420304054870082302noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-55834945769412135872011-09-09T14:14:09.926-05:002011-09-09T14:14:09.926-05:00It is now September 2011 - are you still having go...It is now September 2011 - are you still having good results with Tagamet? My son also suffers from AIP (although we have yet to get an "official" diagnosis through urine testing).Meanwhile we are trying everything possible to alleviate or hopefully prevent future episodes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-76429889561991314902010-09-30T22:50:29.742-05:002010-09-30T22:50:29.742-05:00Kimbo,
I'm so glad the information is helpful....Kimbo,<br />I'm so glad the information is helpful. As for the Tagamet (Cimetidine) I take a 200mg in the AM and another 200mg in the PM. Best of luck to your both.Anniehttps://www.blogger.com/profile/10420304054870082302noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-77004898558503380572010-09-30T12:17:54.832-05:002010-09-30T12:17:54.832-05:00Thank you so much for this information. It is the...Thank you so much for this information. It is the best list of ways people with porphyria can help themselves that I've ever seen compiled. My daughter is extremely sick and they suspect porphyria. Right now they say they can't say she has it (normal Delta ALA and PBG levels but high porphyrins, especially coproporphyrins - sounds like HCP to me) but they won't say she doesn't have it. Armed with this info maybe she can get a little better, she is in pretty much constant attack at this point. Thank you thank you thank you.Kimbohttps://www.blogger.com/profile/08932246874858666082noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-23689680770102891892010-03-16T00:09:27.460-05:002010-03-16T00:09:27.460-05:00Oh my dear. I am so amazed by you and what you sha...Oh my dear. I am so amazed by you and what you share. You truly live a gifted life and what you have said will help many. God bless your persistent stepson, I think he was just as responsible as Isabel.Clarityhttps://www.blogger.com/profile/05705409395605833495noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-34019521350459285312010-03-15T13:45:55.980-05:002010-03-15T13:45:55.980-05:00This is astounding, the intracasies of the disease...This is astounding, the intracasies of the disease that are known and counter that with its unknowns it seems it can be a daily heavy weight to bear. I pray that just as Isabel was a portal to truth for you that what you so honesty have shared may provide some one else with the clues to questions they may be struggling with.Jennyhttps://www.blogger.com/profile/01178225907455093962noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-15180721268833596372010-03-13T23:32:16.873-06:002010-03-13T23:32:16.873-06:00It is so generous of you to share your struggles w...It is so generous of you to share your struggles with this illness and provide information to so many people.<br /><br />Thank you for your courage.FIONAhttps://www.blogger.com/profile/00525085661198210325noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-75423145036187013912010-03-13T22:52:45.002-06:002010-03-13T22:52:45.002-06:00By posting about porphyria you may very well be sa...By posting about porphyria you may very well be saving another life. So very glad you have this under control. I think your stepson must have had an idea that you had the same disease.<br />He didn't give up. He must love you very much.Callie Bradyhttps://www.blogger.com/profile/16379683295150396693noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-4792536885870205772010-03-12T12:43:29.970-06:002010-03-12T12:43:29.970-06:00Blogging doesn't have to be all bunnies and ho...Blogging doesn't have to be all bunnies and home design. I'm glad you've shared this with us, although you had already told me about your condition many moons ago. Having my own medical zebra daughter to care for, I appreciate the levels of care you take in order to keep yourself healthy (I do the same for her). Have you ever had an ER visit where they say "You have what? Can you spell that?" then they exit the room to look it up while you're all rolling your eyes and thinking "Do I have to explain this yet again?"Pop and Icehttps://www.blogger.com/profile/09293232401852452071noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-59297708738197914312010-03-11T23:46:58.238-06:002010-03-11T23:46:58.238-06:00Amazing article. I'll have to pass this along...Amazing article. I'll have to pass this along. I'd never heard about porphyria. So do you think your stepson knew about your having this when he first suggested the book to you?Frieda Babbleyhttps://www.blogger.com/profile/11055267289460549990noreply@blogger.comtag:blogger.com,1999:blog-3490211966730375631.post-1979250267326245412010-03-11T20:01:22.040-06:002010-03-11T20:01:22.040-06:00I'm sure your post will save someone who is su...I'm sure your post will save someone who is suffering and may find some great information. <br /><br />Great post!Elizabethhttps://www.blogger.com/profile/02026706261655333994noreply@blogger.com