Wednesday, February 29, 2012

Rare Disease Day: To Zebras Everywhere

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Detail from Red Zebra by Linda Hickerson Hofheinz

Today is World Rare Disease Day.  I take this opportunity to give virtual hugs to the friends and families all over the world who deal each day with the rare genetic, metabolic disorder called Porphyria, and to salute our friends, families, nurses and physicians who support us in this illness.  So here's hugs to all you rare, beautiful Zebras.  I hear your hoofbeats!


  1. I collected a lot of interesting things from your blog especially its discussion about Cert Killer. I believe I’m not alone having all the enjoyment here! keep up the great work.

  2. Tube Air" which is visible in several small Asics Tiger circles on the midsole of the shoe, "Total Air" which is basically just another word for full Air Max cushioning, "Tuned Air," Hogan Shoes which is a system of individual pods supposedly "tuned" to different areas of the foot. Air in the early 1990s which was visible through the bottom of the shoe (although smaller portions of Air units are visible through the bottom of many Air Max models) and another type of Air cushioning is the low profile and very responsive "Zoom Air." Franklin Marshall Sale The symbols of air cushioning is the 1993 model, which the first to have the fully visible heel Air unit that was visible in the back as well as on the sides.