Rare Disease Day: To Zebras Everywhere

Detail from Red Zebra by Linda Hickerson Hofheinz

Today is World Rare Disease Day.  I take this opportunity to give virtual hugs to the friends and families all over the world who deal each day with the rare genetic, metabolic disorder called Porphyria, and to salute our friends, families, nurses and physicians who support us in this illness.  So here's hugs to all you rare, beautiful Zebras.  I hear your hoofbeats!

Porphyria Information/Support:
What's a Zebra?
How do I deal with Porphyria (Hereditary Coproporphyria)?

Facebook Porphyria Group

Facebook Porphyria Support Group

Open Source Homeomedical Formulas Help Us Help Ourselves

Mapping Porphyria, the "Unchecked for" Disease
Porphyria: Monstropedia
European Porphyria Network
The American Porphyria Foundation