Detail from Red Zebra by Linda Hickerson Hofheinz
Today is World Rare Disease Day. I take this opportunity to give virtual hugs to the friends and families all over the world who deal each day with the rare genetic, metabolic disorder called Porphyria, and to salute our friends, families, nurses and physicians who support us in this illness. So here's hugs to all you rare, beautiful Zebras. I hear your hoofbeats!
Porphyria Information/Support:
What's a Zebra?
How do I deal with Porphyria (Hereditary Coproporphyria)?
What's a Zebra?
How do I deal with Porphyria (Hereditary Coproporphyria)?
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Hope to get better.
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