Monday, April 23, 2012

Porphyria Awareness Week

Today is my birthday...but more importantly this week is Porphyria Awareness Week.  If I were to have one birthday wish, it would be for a  cure to be developed for porphyria.

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  1. Happy Birthday!
    Good news...Clinuvel is in the midst of clinical trials. Maybe a cure will emerge in the coming years :) Stay positive and be well!

  2. A belated "Happy Birthday !" and may your wish come true !

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  4. Today, I went to the beach front with my kids. I found a sea shell and gave it to my 4 year old daughter and said "You can hear the ocean if you put this to your ear."
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